Thursday, July 21, 2011

Bumps along the road.

It has been a while since I have updated on Isabelle's progress with her Amblyopia.  In late March we went for our re-check and she was maintaining and doing great.  The doctor and I made the decision that we would stop patching for a bit and see if her vision would remain stable. Almost exactly a year ago we hit this same point but then at the re-check she had seriously tanked and regressed.   So, holding my breath we tried to go patchless. Belle, of course, was ecstatic about the idea of not wearing the patch.  In May, we went back for her re-check and the results were OK so she was able to still go without the patch.  With 2 successful appointments in a row, to say we were happy would be an understatement.  This has made it so much easier this summer - it is the first summer in what seems like forever that we haven't had to deal with hot, sticky, or irritating patches which are not beach or pool friendly.  

Well, Perhaps Belle and I were getting a bit too comfortable with this idea and on Monday when we went back for her re-check I was really hoping that she was still maintaining and wouldn't need the patch again. 
Unfortunately, I knew right away when she was in with the assistant doing the pre-visit stuff before the doctor comes in.  About 1/2 (or more) of the letters she was reading were wrong.  This wasn't just the O and C usual confusion...  It was letters that bare no resemblance to one another - she was guessing.  Belle started getting frustrated and I tried to keep a smile on my face and stay encouraging to her.

Her doctor looked at me and being sensitive to Belle he commented that "She may need some maintenance".   Belle, not being a dummy - said "Oh you mean the patch again.. not the patch!".  She was very close to tears and it was really awful to watch.  I just knew her vision had gotten worse and what he was saying confirmed it.  Sensitive to Belle getting upset about the patch and having a hard time with the chart , while her was doctor testing her he said... "How would you like to get some new glasses for 1st grade?".   She was very excited about the prospect of getting new glasses - though it is bittersweet to know the reason being  that her vision has gotten worse. 

Belle loves her new pretty purple frames and tells me she looks pretty in them because without her glasses on "she is blurry".

As for patching.  We will be resuming patching sooner than later.  The doctor wants her to get used to her new prescription and at our next re-check we will discuss the patching and the duration.  In the meantime we are going to try to enjoy and make the best of our remaining patch free days of summer.

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