Tuesday, March 8, 2011
When they said broken, they meant broken.
I found his glasses snapped completely in half at the bridge.
I dug out the paperwork because I remembered getting them over the summer - sure enough, the end of August. So off we went to our eyeglass shop with warranty/replacement plan in hand. With kids in glasses, a good replacement plan is an absolute MUST. His lenses were in great shape but the frames were trashed. Unfortunately, they didn't have his current frames in stock and they were on a backorder. So, a simple swap of the lenses wasn't going to work. Because that wasn't our fault, we went on and picked out new frames.
My son's lenses are relatively straightforward so they were able to get his new glasses made right away. The new frames are X-Games "Blading" (in Oil Slick color). They are titanium, so they should hopefully stand up to my active (and autistic) 10 year old son!
Thursday, March 3, 2011
Yesterday I decided to read it since my NOOKcolor was charging. I made myself a cup of my favorite blueberry coffee and sat down with Jillian's Story. And then I did something that I hadn't done in a while. I read a book cover to cover leaving my coffee to go cold. Ok, so it helps that the book is under 100 pages.. but it is very easy to read and a real page turner. So much of it I could relate to, and yes - I did cry.
Jillian's Story is the true story of a girl with Amblyopia, Jillian Benoit. The book is mother/daughter collaborative effort which chronicles her path from Amblyopia diagnosis to 'recovery'. Jillian was about my daughter's age when her amblyopia was discovered and the book was published after their six year 'journey' through patching and ultimately vision therapy.
As I opened up Jillian's Story and began to read it, I saw so much of my daughter in Jillian. Jillian, like my daughter, started out with patching her eye on the advice of her ophthalmologist and she had to wear it for a long time - even to school. Been there, done that. I give these kids who have to patch so much credit! Patching is hard work.
As I read about Jillian's struggles in Kindergarten the timing happens to be particularly on point - my daughter is "the slow cutter", the kid who never finishes her work during centers and has to bring it all home on top of "homework" - which can take hours... The "latest" was her teacher telling me that "she needs to budget her time better". I am dealing with a school that doesn't understand her vision issue and it is so very frustrating - especially considering the prevelance of amblyopia and other vision issues in children. My daughter's struggles are not unlike Jillian's... and it was largely due to Jillian's issues at school that led to her beginning Vision Therapy and changing her life... Yes, a lot of food for thought for me!
The topic of Vision Therapy raises some controversy because many ophthalmologists do not support it, nor do insurance companies pay for it. It reminds me a lot of the autism/biomedical treatment issues - having been there first hand. I also know that taking a risk and treating 'outside the box' with my son's autism has made a huge impact in the quality of his life. So, I am not adverse to Vision Therapy. In fact, I'm a huge fan of one of its pioneers Dr. Susan Barry, the author of Fixing My Gaze. You can learn more about vision therapy here (COVD website). I appreciated the honest take on Vision Therapy that Robin Benoit tells, even down to the nitty gritty on how some of the exercises made her daughter feel physically sick. The eyes are so linked with everything and Amblyopia, after all - is a neurological issue moreso that of the eyes.
I'll wrap up my post today with a heartfelt Thank You to Robin Benoit for being the one to share her daughter's story and promote understanding about Vision Therapy and how it can help. And, to Jillian for being a brave girl who went through a heck of a lot and came out on top.. you are an inspiration to many - including to me and my daughter. I can only hope that my daughter has a similar success and take comfort in reading how others have triumphed. I also find myself inspired to keep on the fight and get a handle on the many 'school issues' we have had all year and continue to have - because most of all what I hate is to see my child struggling.
Those who are impacted by amblyopia or vision related learning issues should consider picking up a copy of Jillian's Story. You can purchase the book at www.jilliansstory.com . There is a special promotion in March in honor of Jillian's 12th birthday. All month long, single copies of the book are $12 instead of $14.95.
Jillian's Story website
Become a fan of Jillian's story on facebook
Len Press on: Jillian’s Story: How Vision Therapy Changed My Daugther’s Life
Dr. Nate of Bright Eyes: Interview with Robin & Jillian about “Jillian’s Story” and Vision Therapy
Wednesday, March 2, 2011
My daughter is crazy about them.
Especially because she earned most of them by wearing her eye patch every day and "getting in her hours".
Now, you can get Krafty Eye Patch kits with stickers and "Fun Bands". The kit comes in a "sea life" theme including foam shapes and stickers as well as stretchy bracelets - appropriate for either boys or girls. I really like the bright colors!
Hooray for Dolls with Glasses!
On March 2 representatives of Prevent Blindness America will be walking the halls of Congress for our annual Eyes on Capitol Hill event. We will be making sure that Capitol Hill knows just how important vision and eye health are to you and your loved ones.
You can join in Eyes on Capitol Hill from home!
Call your Representative and Senators to tell them about vision and eye health and how important it is to you. Join the Prevent Blindness America Capitol Call-in on March 2 and take part in a national advocacy day dedicated to your eye health and vision.
Can't call on March 2? Click here to make your call today.
You can also RSVP on Facebook.